Home

Hi!

My little buddy was diagnosed with nystagmus and foveal hypoplasia at three months.  This points to a diagnosis of Ocular Albinism.  Buddy is a great little guy, and he has had some setbacks, but for the most part, you would never know he has a problem.

When we first got the diagnoses, we were scared and confused.  I tried looking online for information from other mothers, but it is a fairly rare condition, and I didn't really find what I was looking for.  I started this blog to share my feelings, to share information with family and friends, and to offer a personal story for other parents to find and read if their child is diagnosed with something similar.

Buddy is doing so well, I don't always have something to say about OA, but I like putting Buddy's progress reports on here, too, so that everyone knows how well he is doing.

So, please, join us as we experience parenthood, learn about low vision, and celebrate a fantastic little boy!

No comments:

Post a Comment