Check out my Ocular Albinism Pinterest Board where you can find links to videos where people talk about their own experiences and show what low vision is like, and links for recipes with eye-healthy foods, and other products that have been helpful:
Pinterest-Ocular Albinism
Other helpful links:
NOAH
Florida Division of Blind Services --If you don't live in Florida, there should be something similar in your state. They provide lots of support services.
Early Steps Program--Also in Florida. Again, there are probably similar programs in other states.
We have also joined a group on Facebook for Ocular Albinism. You must request to be added, but once you are in, you can ask questions and share your thoughts. People with OA post their progress, which is really encouraging, such as the student who was recently accepted to medical school.
Blogs about Nystagmus:
The Shifty Eyes Blog--Written by someone with nystagmus
Living With Nystagmus--A website with information and a blog about a little boy with nystagmus and ocular albinism
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